The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts.
Identifieur interne : 000758 ( Main/Exploration ); précédent : 000757; suivant : 000759The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts.
Auteurs : Dane H. Dougherty [États-Unis] ; Linda Kwakkenbos [Canada, Pays-Bas] ; Marie-Eve Carrier [Canada] ; Gloria Salazar [États-Unis] ; Shervin Assassi [États-Unis] ; Murray Baron [Canada] ; Susan J. Bartlett [Canada, États-Unis] ; Daniel E. Furst [États-Unis, Italie] ; Karen Gottesman [États-Unis] ; Frank Van Den Hoogen [Pays-Bas] ; Vanessa L. Malcarne [États-Unis] ; Luc Mouthon [France] ; Warren R. Nielson [Canada] ; Serge Poiraudeau [France] ; Maureen Sauvé [Canada] ; Gilles Boire [Canada] ; Alessandra Bruns [Canada] ; Lorinda Chung [États-Unis] ; Christopher Denton [Royaume-Uni] ; James V. Dunne [Canada] ; Paul Fortin [Canada] ; Tracy Frech [États-Unis] ; Anna Gill [Canada] ; Jessica Gordon [États-Unis] ; Ariane L. Herrick [Royaume-Uni] ; Monique Hinchcliff [États-Unis] ; Marie Hudson [Canada] ; Sindhu R. Johnson [Canada] ; Niall Jones [Canada] ; Suzanne Kafaja [États-Unis] ; Maggie Larché [Canada] ; Joanne Manning [Royaume-Uni] ; Janet Pope [Canada] ; Robert Spiera [États-Unis] ; Virginia Steen [États-Unis] ; Evelyn Sutton ; Carter Thorne ; Pearce Wilcox [Canada] ; Brett D. Thombs [Canada] ; Maureen D. Mayes [États-Unis]Source :
- Rheumatology (Oxford, England) [ 1462-0332 ] ; 2018.
Descripteurs français
- KwdFr :
- Adulte d'âge moyen (MeSH), Bases de données factuelles (MeSH), Canada (épidémiologie), Enquêtes et questionnaires (MeSH), Europe (épidémiologie), Femelle (MeSH), Humains (MeSH), Indice de gravité de la maladie (MeSH), Mesures des résultats rapportés par les patients (MeSH), Mâle (MeSH), Prévalence (MeSH), Satisfaction des patients (MeSH), Sclérodermie systémique (diagnostic), Sclérodermie systémique (thérapie), Sclérodermie systémique (épidémiologie), Soins centrés sur le patient (MeSH), États-Unis (épidémiologie), Études de suivi (MeSH), Études rétrospectives (MeSH).
- MESH :
- diagnostic : Sclérodermie systémique.
- thérapie : Sclérodermie systémique.
- épidémiologie : Canada, Europe, Sclérodermie systémique, États-Unis.
- Adulte d'âge moyen, Bases de données factuelles, Enquêtes et questionnaires, Femelle, Humains, Indice de gravité de la maladie, Mesures des résultats rapportés par les patients, Mâle, Prévalence, Satisfaction des patients, Soins centrés sur le patient, Études de suivi, Études rétrospectives.
English descriptors
- KwdEn :
- Canada (epidemiology), Databases, Factual (MeSH), Europe (epidemiology), Female (MeSH), Follow-Up Studies (MeSH), Humans (MeSH), Male (MeSH), Middle Aged (MeSH), Patient Reported Outcome Measures (MeSH), Patient Satisfaction (MeSH), Patient-Centered Care (MeSH), Prevalence (MeSH), Retrospective Studies (MeSH), Scleroderma, Systemic (diagnosis), Scleroderma, Systemic (epidemiology), Scleroderma, Systemic (therapy), Severity of Illness Index (MeSH), Surveys and Questionnaires (MeSH), United States (epidemiology).
- MESH :
- diagnosis : Scleroderma, Systemic.
- epidemiology : Canada, Europe, Scleroderma, Systemic, United States.
- therapy : Scleroderma, Systemic.
- Databases, Factual, Female, Follow-Up Studies, Humans, Male, Middle Aged, Patient Reported Outcome Measures, Patient Satisfaction, Patient-Centered Care, Prevalence, Retrospective Studies, Severity of Illness Index, Surveys and Questionnaires.
Abstract
Objectives
The Scleroderma Patient-centered Intervention Network (SPIN) Cohort is a web-based cohort designed to collect patient-reported outcomes at regular intervals as a framework for conducting trials of psychosocial, educational, self-management and rehabilitation interventions for patients with SSc. The aim of this study was to present baseline demographic, medical and patient-reported outcome data of the SPIN Cohort and to compare it with other large SSc cohorts.
Methods
Descriptive statistics were used to summarize SPIN Cohort characteristics; these were compared with published data of the European Scleroderma Trials and Research (EUSTAR) and Canadian Scleroderma Research Group (CSRG) cohorts.
Results
Demographic, organ involvement and antibody profile data for SPIN (N = 1125) were generally comparable with that of the EUSTAR (N = 7319) and CSRG (N = 1390) cohorts. There was a high proportion of women and White patients in all cohorts, though relative proportions differed. Scl70 antibody frequency was highest in EUSTAR, somewhat lower in SPIN, and lowest in CSRG, consistent with the higher proportion of interstitial lung disease among dcSSc patients in SPIN compared with in CSRG (48.5 vs 40.3%). RNA polymerase III antibody frequency was highest in SPIN and remarkably lower in EUSTAR (21.1 vs 2.4%), in line with the higher prevalence of SSc renal crisis (4.5 vs 2.1%) in SPIN.
Conclusion
Although there are some differences, the SPIN Cohort is broadly comparable with other large prevalent SSc cohorts, increasing confidence that insights gained from the SPIN Cohort should be generalizable, although it should be noted that all three cohorts include primarily White participants.
DOI: 10.1093/rheumatology/key139
PubMed: 29868924
Affiliations:
- Canada, France, Italie, Pays-Bas, Royaume-Uni, États-Unis
- Angleterre, Californie, Colombie-Britannique , District de Columbia, Grand Londres, Grand Manchester, Gueldre, Illinois, Maryland, Massachusetts, Ontario, Québec, Texas, Utah, Washington (État), État de New York, Île-de-France
- Hamilton (Ontario), Londres, Manchester, Montréal, Nimègue, Paris, Québec (ville), Seattle, Stanford (Californie), Toronto, Vancouver
- Université Laval, Université McGill, Université McMaster, Université Paris-Descartes, Université Stanford, Université de Manchester, Université de Toronto, Université de Washington, Université de la Colombie-Britannique
Links toward previous steps (curation, corpus...)
Le document en format XML
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Bartlett</name><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="2"><nlm:affiliation>Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>McGill University Health Center, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>McGill University Health Center, Montréal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Furst, Daniel E" sort="Furst, Daniel E" uniqKey="Furst D" first="Daniel E" last="Furst">Daniel E. Furst</name><affiliation wicri:level="2"><nlm:affiliation>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Medicine, University of Washington, Seattle, WA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Medicine, University of Washington, Seattle, WA</wicri:regionArea><placeName><region type="state">Washington (État)</region><settlement type="city">Seattle</settlement></placeName><orgName type="university">Université de Washington</orgName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Medicine, University of Florence, Florence, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Medicine, University of Florence, Florence</wicri:regionArea><wicri:noRegion>Florence</wicri:noRegion></affiliation></author><author><name sortKey="Gottesman, Karen" sort="Gottesman, Karen" uniqKey="Gottesman K" first="Karen" last="Gottesman">Karen Gottesman</name><affiliation wicri:level="2"><nlm:affiliation>Scleroderma Foundation, Danvers, MA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Scleroderma Foundation, Danvers, MA</wicri:regionArea><placeName><region type="state">Massachusetts</region></placeName></affiliation></author><author><name sortKey="Van Den Hoogen, Frank" sort="Van Den Hoogen, Frank" uniqKey="Van Den Hoogen F" first="Frank" last="Van Den Hoogen">Frank Van Den Hoogen</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Radboud University Medical Center, Nijmegen, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Rheumatology, Radboud University Medical Center, Nijmegen</wicri:regionArea><placeName><settlement type="city">Nimègue</settlement><region type="province" nuts="2">Gueldre</region></placeName></affiliation><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Sint Maartenskliniek, Nijmegen, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Rheumatology, Sint Maartenskliniek, Nijmegen</wicri:regionArea><placeName><settlement type="city">Nimègue</settlement><region type="province" nuts="2">Gueldre</region></placeName></affiliation></author><author><name sortKey="Malcarne, Vanessa L" sort="Malcarne, Vanessa L" uniqKey="Malcarne V" first="Vanessa L" last="Malcarne">Vanessa L. Malcarne</name><affiliation wicri:level="2"><nlm:affiliation>Department of Psychology, San Diego State University, San Diego, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Psychology, San Diego State University, San Diego, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation><affiliation wicri:level="2"><nlm:affiliation>San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Mouthon, Luc" sort="Mouthon, Luc" uniqKey="Mouthon L" first="Luc" last="Mouthon">Luc Mouthon</name><affiliation wicri:level="4"><nlm:affiliation>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris</wicri:regionArea><wicri:noRegion>Assistance Publique-Hôpitaux de Paris</wicri:noRegion><orgName type="university">Université Paris-Descartes</orgName><placeName><settlement type="city">Paris</settlement><region type="region" nuts="2">Île-de-France</region></placeName></affiliation><affiliation wicri:level="3"><nlm:affiliation>Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes Rares, vascularites nécrosantes et sclérodermie systémique, Hôpital Cochin, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes Rares, vascularites nécrosantes et sclérodermie systémique, Hôpital Cochin, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author><author><name sortKey="Nielson, Warren R" sort="Nielson, Warren R" uniqKey="Nielson W" first="Warren R" last="Nielson">Warren R. Nielson</name><affiliation wicri:level="1"><nlm:affiliation>Beryl & Richard Ivey Rheumatology Day Programs, St Joseph's Health Care, London, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Beryl & Richard Ivey Rheumatology Day Programs, St Joseph's Health Care, London, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Lawson Health Research Institute, London, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Lawson Health Research Institute, London, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation></author><author><name sortKey="Poiraudeau, Serge" sort="Poiraudeau, Serge" uniqKey="Poiraudeau S" first="Serge" last="Poiraudeau">Serge Poiraudeau</name><affiliation wicri:level="4"><nlm:affiliation>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris</wicri:regionArea><wicri:noRegion>Assistance Publique-Hôpitaux de Paris</wicri:noRegion><orgName type="university">Université Paris-Descartes</orgName><placeName><settlement type="city">Paris</settlement><region type="region" nuts="2">Île-de-France</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Service de Médecine Physique et Réadaptation, Hôpital Cochin, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Service de Médecine Physique et Réadaptation, Hôpital Cochin</wicri:regionArea><wicri:noRegion>Hôpital Cochin</wicri:noRegion><wicri:noRegion>Hôpital Cochin</wicri:noRegion></affiliation><affiliation wicri:level="3"><nlm:affiliation>IFR Handicap INSERM, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>IFR Handicap INSERM, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author><author><name sortKey="Sauve, Maureen" sort="Sauve, Maureen" uniqKey="Sauve M" first="Maureen" last="Sauvé">Maureen Sauvé</name><affiliation><nlm:affiliation>Scleroderma Society of Ontario, Hamilton.</nlm:affiliation><wicri:noCountry code="subField">Hamilton</wicri:noCountry></affiliation><affiliation wicri:level="1"><nlm:affiliation>Scleroderma Society of Canada, Ottawa, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Scleroderma Society of Canada, Ottawa, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation></author><author><name sortKey="Boire, Gilles" sort="Boire, Gilles" uniqKey="Boire G" first="Gilles" last="Boire">Gilles Boire</name><affiliation wicri:level="1"><nlm:affiliation>Département de médecine, Sherbrooke University, Sherbrooke, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Département de médecine, Sherbrooke University, Sherbrooke, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Bruns, Alessandra" sort="Bruns, Alessandra" uniqKey="Bruns A" first="Alessandra" last="Bruns">Alessandra Bruns</name><affiliation wicri:level="1"><nlm:affiliation>Département de médecine, Sherbrooke University, Sherbrooke, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Département de médecine, Sherbrooke University, Sherbrooke, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Chung, Lorinda" sort="Chung, Lorinda" uniqKey="Chung L" first="Lorinda" last="Chung">Lorinda Chung</name><affiliation wicri:level="4"><nlm:affiliation>Medicine - Med/Immunology & Rheumatology, Stanford University, Stanford, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Medicine - Med/Immunology & Rheumatology, Stanford University, Stanford, CA</wicri:regionArea><placeName><region type="state">Californie</region><settlement type="city">Stanford (Californie)</settlement></placeName><orgName type="university">Université Stanford</orgName></affiliation></author><author><name sortKey="Denton, Christopher" sort="Denton, Christopher" uniqKey="Denton C" first="Christopher" last="Denton">Christopher Denton</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Royal Free London Hospital, London, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Rheumatology, Royal Free London Hospital, London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName></affiliation></author><author><name sortKey="Dunne, James V" sort="Dunne, James V" uniqKey="Dunne J" first="James V" last="Dunne">James V. Dunne</name><affiliation wicri:level="4"><nlm:affiliation>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC</wicri:regionArea><orgName type="university">Université de la Colombie-Britannique</orgName><placeName><settlement type="city">Vancouver</settlement><region type="state">Colombie-Britannique </region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, University of British Columbia, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, University of British Columbia, Vancouver, BC</wicri:regionArea><orgName type="university">Université de la Colombie-Britannique</orgName><placeName><settlement type="city">Vancouver</settlement><region type="state">Colombie-Britannique </region></placeName></affiliation></author><author><name sortKey="Fortin, Paul" sort="Fortin, Paul" uniqKey="Fortin P" first="Paul" last="Fortin">Paul Fortin</name><affiliation wicri:level="4"><nlm:affiliation>Département de médecine, Université Laval, Québec, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Département de médecine, Université Laval, Québec, QC</wicri:regionArea><orgName type="university">Université Laval</orgName><placeName><settlement type="city">Québec (ville)</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Frech, Tracy" sort="Frech, Tracy" uniqKey="Frech T" first="Tracy" last="Frech">Tracy Frech</name><affiliation wicri:level="2"><nlm:affiliation>Internal Medicine, University of Utah, Salt Lake City, UT, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Internal Medicine, University of Utah, Salt Lake City, UT</wicri:regionArea><placeName><region type="state">Utah</region></placeName></affiliation></author><author><name sortKey="Gill, Anna" sort="Gill, Anna" uniqKey="Gill A" first="Anna" last="Gill">Anna Gill</name><affiliation wicri:level="4"><nlm:affiliation>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC</wicri:regionArea><orgName type="university">Université de la Colombie-Britannique</orgName><placeName><settlement type="city">Vancouver</settlement><region type="state">Colombie-Britannique </region></placeName></affiliation></author><author><name sortKey="Gordon, Jessica" sort="Gordon, Jessica" uniqKey="Gordon J" first="Jessica" last="Gordon">Jessica Gordon</name><affiliation wicri:level="2"><nlm:affiliation>Department of Rheumatology, Hospital for Special Surgery, New York City, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Rheumatology, Hospital for Special Surgery, New York City, NY</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Herrick, Ariane L" sort="Herrick, Ariane L" uniqKey="Herrick A" first="Ariane L" last="Herrick">Ariane L. Herrick</name><affiliation wicri:level="4"><nlm:affiliation>Division of Musculoskeletal & Dermatological Sciences, University of Manchester, Salford Royal NHS Foundation Trust, Manchester, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Division of Musculoskeletal & Dermatological Sciences, University of Manchester, Salford Royal NHS Foundation Trust, Manchester</wicri:regionArea><placeName><settlement type="city">Manchester</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Manchester</region></placeName><orgName type="university">Université de Manchester</orgName></affiliation></author><author><name sortKey="Hinchcliff, Monique" sort="Hinchcliff, Monique" uniqKey="Hinchcliff M" first="Monique" last="Hinchcliff">Monique Hinchcliff</name><affiliation wicri:level="2"><nlm:affiliation>Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Feinberg School of Medicine, Northwestern University, Chicago, IL</wicri:regionArea><placeName><region type="state">Illinois</region></placeName></affiliation></author><author><name sortKey="Hudson, Marie" sort="Hudson, Marie" uniqKey="Hudson M" first="Marie" last="Hudson">Marie Hudson</name><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Center for Clinical Epidemiology and Community Studies, Jewish General Hospital, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Center for Clinical Epidemiology and Community Studies, Jewish General Hospital, Montréal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Johnson, Sindhu R" sort="Johnson, Sindhu R" uniqKey="Johnson S" first="Sindhu R" last="Johnson">Sindhu R. Johnson</name><affiliation wicri:level="4"><nlm:affiliation>Toronto Scleroderma Program, Mount Sinai Hospital, Toronto Western Hospital, University of Toronto, Toronto, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Toronto Scleroderma Program, Mount Sinai Hospital, Toronto Western Hospital, University of Toronto, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>University of Toronto, Toronto, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>University of Toronto, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Jones, Niall" sort="Jones, Niall" uniqKey="Jones N" first="Niall" last="Jones">Niall Jones</name><affiliation wicri:level="1"><nlm:affiliation>Division of Rheumatology, University of Alberta, Edmonton, AB, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Rheumatology, University of Alberta, Edmonton, AB</wicri:regionArea><wicri:noRegion>AB</wicri:noRegion></affiliation></author><author><name sortKey="Kafaja, Suzanne" sort="Kafaja, Suzanne" uniqKey="Kafaja S" first="Suzanne" last="Kafaja">Suzanne Kafaja</name><affiliation wicri:level="2"><nlm:affiliation>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Larche, Maggie" sort="Larche, Maggie" uniqKey="Larche M" first="Maggie" last="Larché">Maggie Larché</name><affiliation wicri:level="4"><nlm:affiliation>Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Faculty of Health Sciences, McMaster University, Hamilton, ON</wicri:regionArea><orgName type="university">Université McMaster</orgName><placeName><settlement type="city">Hamilton (Ontario)</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Manning, Joanne" sort="Manning, Joanne" uniqKey="Manning J" first="Joanne" last="Manning">Joanne Manning</name><affiliation wicri:level="1"><nlm:affiliation>Clinical and Research Vascular Laboratories, Salford Royal NHS Foundation Trust, Salford, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Clinical and Research Vascular Laboratories, Salford Royal NHS Foundation Trust, Salford</wicri:regionArea><wicri:noRegion>Salford</wicri:noRegion></affiliation></author><author><name sortKey="Pope, Janet" sort="Pope, Janet" uniqKey="Pope J" first="Janet" last="Pope">Janet Pope</name><affiliation wicri:level="1"><nlm:affiliation>Bone & Joint Institute, University of Western Ontario, London, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Bone & Joint Institute, University of Western Ontario, London, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation></author><author><name sortKey="Spiera, Robert" sort="Spiera, Robert" uniqKey="Spiera R" first="Robert" last="Spiera">Robert Spiera</name><affiliation wicri:level="2"><nlm:affiliation>Department of Rheumatology, Hospital for Special Surgery, New York City, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Rheumatology, Hospital for Special Surgery, New York City, NY</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Steen, Virginia" sort="Steen, Virginia" uniqKey="Steen V" first="Virginia" last="Steen">Virginia Steen</name><affiliation wicri:level="2"><nlm:affiliation>Department of Medicine, Georgetown University, Washington, DC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Medicine, Georgetown University, Washington, DC</wicri:regionArea><placeName><region type="state">District de Columbia</region></placeName></affiliation></author><author><name sortKey="Sutton, Evelyn" sort="Sutton, Evelyn" uniqKey="Sutton E" first="Evelyn" last="Sutton">Evelyn Sutton</name><affiliation><nlm:affiliation>Division of Rheumatology, Dalhousie University, Halifax, NS.</nlm:affiliation><wicri:noCountry code="subField">NS</wicri:noCountry></affiliation></author><author><name sortKey="Thorne, Carter" sort="Thorne, Carter" uniqKey="Thorne C" first="Carter" last="Thorne">Carter Thorne</name><affiliation><nlm:affiliation>Southlake Regional Health Centre, Newmarket, ON.</nlm:affiliation><wicri:noCountry code="subField">ON</wicri:noCountry></affiliation></author><author><name sortKey="Wilcox, Pearce" sort="Wilcox, Pearce" uniqKey="Wilcox P" first="Pearce" last="Wilcox">Pearce Wilcox</name><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, University of British Columbia, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, University of British Columbia, Vancouver, BC</wicri:regionArea><orgName type="university">Université de la Colombie-Britannique</orgName><placeName><settlement type="city">Vancouver</settlement><region type="state">Colombie-Britannique </region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Département de médecine, Université Laval, Québec, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Département de médecine, Université Laval, Québec, QC</wicri:regionArea><orgName type="university">Université Laval</orgName><placeName><settlement type="city">Québec (ville)</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><affiliation wicri:level="4"><nlm:affiliation>Department of Psychiatry, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Psychiatry, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montréal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Educational and Counselling Psychology, McGill University, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Educational and Counselling Psychology, McGill University, Montréal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Psychology, McGill University, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Psychology, McGill University, Montréal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>School of Nursing, McGill University, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>School of Nursing, McGill University, Montréal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Mayes, Maureen D" sort="Mayes, Maureen D" uniqKey="Mayes M" first="Maureen D" last="Mayes">Maureen D. Mayes</name><affiliation wicri:level="2"><nlm:affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX</wicri:regionArea><placeName><region type="state">Texas</region></placeName></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2018">2018</date><idno type="RBID">pubmed:29868924</idno><idno type="pmid">29868924</idno><idno type="doi">10.1093/rheumatology/key139</idno><idno type="wicri:Area/Main/Corpus">000821</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">000821</idno><idno type="wicri:Area/Main/Curation">000821</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">000821</idno><idno type="wicri:Area/Main/Exploration">000821</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts.</title><author><name sortKey="Dougherty, Dane H" sort="Dougherty, Dane H" uniqKey="Dougherty D" first="Dane H" last="Dougherty">Dane H. Dougherty</name><affiliation wicri:level="2"><nlm:affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX</wicri:regionArea><placeName><region type="state">Texas</region></placeName></affiliation></author><author><name sortKey="Kwakkenbos, Linda" sort="Kwakkenbos, Linda" uniqKey="Kwakkenbos L" first="Linda" last="Kwakkenbos">Linda Kwakkenbos</name><affiliation wicri:level="4"><nlm:affiliation>Department of Psychiatry, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Psychiatry, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation><affiliation wicri:level="3"><nlm:affiliation>Behavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen, the Netherlands.</nlm:affiliation><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Behavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen</wicri:regionArea><placeName><settlement type="city">Nimègue</settlement><region type="province" nuts="2">Gueldre</region></placeName></affiliation></author><author><name sortKey="Carrier, Marie Eve" sort="Carrier, Marie Eve" uniqKey="Carrier M" first="Marie-Eve" last="Carrier">Marie-Eve Carrier</name><affiliation wicri:level="1"><nlm:affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Salazar, Gloria" sort="Salazar, Gloria" uniqKey="Salazar G" first="Gloria" last="Salazar">Gloria Salazar</name><affiliation wicri:level="2"><nlm:affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX</wicri:regionArea><placeName><region type="state">Texas</region></placeName></affiliation></author><author><name sortKey="Assassi, Shervin" sort="Assassi, Shervin" uniqKey="Assassi S" first="Shervin" last="Assassi">Shervin Assassi</name><affiliation wicri:level="2"><nlm:affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX</wicri:regionArea><placeName><region type="state">Texas</region></placeName></affiliation></author><author><name sortKey="Baron, Murray" sort="Baron, Murray" uniqKey="Baron M" first="Murray" last="Baron">Murray Baron</name><affiliation wicri:level="1"><nlm:affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Bartlett, Susan J" sort="Bartlett, Susan J" uniqKey="Bartlett S" first="Susan J" last="Bartlett">Susan J. Bartlett</name><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="2"><nlm:affiliation>Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>McGill University Health Center, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>McGill University Health Center, Montréal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Furst, Daniel E" sort="Furst, Daniel E" uniqKey="Furst D" first="Daniel E" last="Furst">Daniel E. Furst</name><affiliation wicri:level="2"><nlm:affiliation>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Medicine, University of Washington, Seattle, WA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Medicine, University of Washington, Seattle, WA</wicri:regionArea><placeName><region type="state">Washington (État)</region><settlement type="city">Seattle</settlement></placeName><orgName type="university">Université de Washington</orgName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Medicine, University of Florence, Florence, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Medicine, University of Florence, Florence</wicri:regionArea><wicri:noRegion>Florence</wicri:noRegion></affiliation></author><author><name sortKey="Gottesman, Karen" sort="Gottesman, Karen" uniqKey="Gottesman K" first="Karen" last="Gottesman">Karen Gottesman</name><affiliation wicri:level="2"><nlm:affiliation>Scleroderma Foundation, Danvers, MA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Scleroderma Foundation, Danvers, MA</wicri:regionArea><placeName><region type="state">Massachusetts</region></placeName></affiliation></author><author><name sortKey="Van Den Hoogen, Frank" sort="Van Den Hoogen, Frank" uniqKey="Van Den Hoogen F" first="Frank" last="Van Den Hoogen">Frank Van Den Hoogen</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Radboud University Medical Center, Nijmegen, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Rheumatology, Radboud University Medical Center, Nijmegen</wicri:regionArea><placeName><settlement type="city">Nimègue</settlement><region type="province" nuts="2">Gueldre</region></placeName></affiliation><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Sint Maartenskliniek, Nijmegen, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Rheumatology, Sint Maartenskliniek, Nijmegen</wicri:regionArea><placeName><settlement type="city">Nimègue</settlement><region type="province" nuts="2">Gueldre</region></placeName></affiliation></author><author><name sortKey="Malcarne, Vanessa L" sort="Malcarne, Vanessa L" uniqKey="Malcarne V" first="Vanessa L" last="Malcarne">Vanessa L. Malcarne</name><affiliation wicri:level="2"><nlm:affiliation>Department of Psychology, San Diego State University, San Diego, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Psychology, San Diego State University, San Diego, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation><affiliation wicri:level="2"><nlm:affiliation>San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Mouthon, Luc" sort="Mouthon, Luc" uniqKey="Mouthon L" first="Luc" last="Mouthon">Luc Mouthon</name><affiliation wicri:level="4"><nlm:affiliation>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris</wicri:regionArea><wicri:noRegion>Assistance Publique-Hôpitaux de Paris</wicri:noRegion><orgName type="university">Université Paris-Descartes</orgName><placeName><settlement type="city">Paris</settlement><region type="region" nuts="2">Île-de-France</region></placeName></affiliation><affiliation wicri:level="3"><nlm:affiliation>Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes Rares, vascularites nécrosantes et sclérodermie systémique, Hôpital Cochin, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes Rares, vascularites nécrosantes et sclérodermie systémique, Hôpital Cochin, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author><author><name sortKey="Nielson, Warren R" sort="Nielson, Warren R" uniqKey="Nielson W" first="Warren R" last="Nielson">Warren R. Nielson</name><affiliation wicri:level="1"><nlm:affiliation>Beryl & Richard Ivey Rheumatology Day Programs, St Joseph's Health Care, London, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Beryl & Richard Ivey Rheumatology Day Programs, St Joseph's Health Care, London, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Lawson Health Research Institute, London, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Lawson Health Research Institute, London, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation></author><author><name sortKey="Poiraudeau, Serge" sort="Poiraudeau, Serge" uniqKey="Poiraudeau S" first="Serge" last="Poiraudeau">Serge Poiraudeau</name><affiliation wicri:level="4"><nlm:affiliation>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris</wicri:regionArea><wicri:noRegion>Assistance Publique-Hôpitaux de Paris</wicri:noRegion><orgName type="university">Université Paris-Descartes</orgName><placeName><settlement type="city">Paris</settlement><region type="region" nuts="2">Île-de-France</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Service de Médecine Physique et Réadaptation, Hôpital Cochin, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Service de Médecine Physique et Réadaptation, Hôpital Cochin</wicri:regionArea><wicri:noRegion>Hôpital Cochin</wicri:noRegion><wicri:noRegion>Hôpital Cochin</wicri:noRegion></affiliation><affiliation wicri:level="3"><nlm:affiliation>IFR Handicap INSERM, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>IFR Handicap INSERM, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author><author><name sortKey="Sauve, Maureen" sort="Sauve, Maureen" uniqKey="Sauve M" first="Maureen" last="Sauvé">Maureen Sauvé</name><affiliation><nlm:affiliation>Scleroderma Society of Ontario, Hamilton.</nlm:affiliation><wicri:noCountry code="subField">Hamilton</wicri:noCountry></affiliation><affiliation wicri:level="1"><nlm:affiliation>Scleroderma Society of Canada, Ottawa, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Scleroderma Society of Canada, Ottawa, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation></author><author><name sortKey="Boire, Gilles" sort="Boire, Gilles" uniqKey="Boire G" first="Gilles" last="Boire">Gilles Boire</name><affiliation wicri:level="1"><nlm:affiliation>Département de médecine, Sherbrooke University, Sherbrooke, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Département de médecine, Sherbrooke University, Sherbrooke, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Bruns, Alessandra" sort="Bruns, Alessandra" uniqKey="Bruns A" first="Alessandra" last="Bruns">Alessandra Bruns</name><affiliation wicri:level="1"><nlm:affiliation>Département de médecine, Sherbrooke University, Sherbrooke, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Département de médecine, Sherbrooke University, Sherbrooke, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Chung, Lorinda" sort="Chung, Lorinda" uniqKey="Chung L" first="Lorinda" last="Chung">Lorinda Chung</name><affiliation wicri:level="4"><nlm:affiliation>Medicine - Med/Immunology & Rheumatology, Stanford University, Stanford, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Medicine - Med/Immunology & Rheumatology, Stanford University, Stanford, CA</wicri:regionArea><placeName><region type="state">Californie</region><settlement type="city">Stanford (Californie)</settlement></placeName><orgName type="university">Université Stanford</orgName></affiliation></author><author><name sortKey="Denton, Christopher" sort="Denton, Christopher" uniqKey="Denton C" first="Christopher" last="Denton">Christopher Denton</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Royal Free London Hospital, London, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Rheumatology, Royal Free London Hospital, London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName></affiliation></author><author><name sortKey="Dunne, James V" sort="Dunne, James V" uniqKey="Dunne J" first="James V" last="Dunne">James V. Dunne</name><affiliation wicri:level="4"><nlm:affiliation>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC</wicri:regionArea><orgName type="university">Université de la Colombie-Britannique</orgName><placeName><settlement type="city">Vancouver</settlement><region type="state">Colombie-Britannique </region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, University of British Columbia, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, University of British Columbia, Vancouver, BC</wicri:regionArea><orgName type="university">Université de la Colombie-Britannique</orgName><placeName><settlement type="city">Vancouver</settlement><region type="state">Colombie-Britannique </region></placeName></affiliation></author><author><name sortKey="Fortin, Paul" sort="Fortin, Paul" uniqKey="Fortin P" first="Paul" last="Fortin">Paul Fortin</name><affiliation wicri:level="4"><nlm:affiliation>Département de médecine, Université Laval, Québec, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Département de médecine, Université Laval, Québec, QC</wicri:regionArea><orgName type="university">Université Laval</orgName><placeName><settlement type="city">Québec (ville)</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Frech, Tracy" sort="Frech, Tracy" uniqKey="Frech T" first="Tracy" last="Frech">Tracy Frech</name><affiliation wicri:level="2"><nlm:affiliation>Internal Medicine, University of Utah, Salt Lake City, UT, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Internal Medicine, University of Utah, Salt Lake City, UT</wicri:regionArea><placeName><region type="state">Utah</region></placeName></affiliation></author><author><name sortKey="Gill, Anna" sort="Gill, Anna" uniqKey="Gill A" first="Anna" last="Gill">Anna Gill</name><affiliation wicri:level="4"><nlm:affiliation>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC</wicri:regionArea><orgName type="university">Université de la Colombie-Britannique</orgName><placeName><settlement type="city">Vancouver</settlement><region type="state">Colombie-Britannique </region></placeName></affiliation></author><author><name sortKey="Gordon, Jessica" sort="Gordon, Jessica" uniqKey="Gordon J" first="Jessica" last="Gordon">Jessica Gordon</name><affiliation wicri:level="2"><nlm:affiliation>Department of Rheumatology, Hospital for Special Surgery, New York City, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Rheumatology, Hospital for Special Surgery, New York City, NY</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Herrick, Ariane L" sort="Herrick, Ariane L" uniqKey="Herrick A" first="Ariane L" last="Herrick">Ariane L. Herrick</name><affiliation wicri:level="4"><nlm:affiliation>Division of Musculoskeletal & Dermatological Sciences, University of Manchester, Salford Royal NHS Foundation Trust, Manchester, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Division of Musculoskeletal & Dermatological Sciences, University of Manchester, Salford Royal NHS Foundation Trust, Manchester</wicri:regionArea><placeName><settlement type="city">Manchester</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Manchester</region></placeName><orgName type="university">Université de Manchester</orgName></affiliation></author><author><name sortKey="Hinchcliff, Monique" sort="Hinchcliff, Monique" uniqKey="Hinchcliff M" first="Monique" last="Hinchcliff">Monique Hinchcliff</name><affiliation wicri:level="2"><nlm:affiliation>Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Feinberg School of Medicine, Northwestern University, Chicago, IL</wicri:regionArea><placeName><region type="state">Illinois</region></placeName></affiliation></author><author><name sortKey="Hudson, Marie" sort="Hudson, Marie" uniqKey="Hudson M" first="Marie" last="Hudson">Marie Hudson</name><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Center for Clinical Epidemiology and Community Studies, Jewish General Hospital, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Center for Clinical Epidemiology and Community Studies, Jewish General Hospital, Montréal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation></author><author><name sortKey="Johnson, Sindhu R" sort="Johnson, Sindhu R" uniqKey="Johnson S" first="Sindhu R" last="Johnson">Sindhu R. Johnson</name><affiliation wicri:level="4"><nlm:affiliation>Toronto Scleroderma Program, Mount Sinai Hospital, Toronto Western Hospital, University of Toronto, Toronto, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Toronto Scleroderma Program, Mount Sinai Hospital, Toronto Western Hospital, University of Toronto, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>University of Toronto, Toronto, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>University of Toronto, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Jones, Niall" sort="Jones, Niall" uniqKey="Jones N" first="Niall" last="Jones">Niall Jones</name><affiliation wicri:level="1"><nlm:affiliation>Division of Rheumatology, University of Alberta, Edmonton, AB, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Rheumatology, University of Alberta, Edmonton, AB</wicri:regionArea><wicri:noRegion>AB</wicri:noRegion></affiliation></author><author><name sortKey="Kafaja, Suzanne" sort="Kafaja, Suzanne" uniqKey="Kafaja S" first="Suzanne" last="Kafaja">Suzanne Kafaja</name><affiliation wicri:level="2"><nlm:affiliation>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Larche, Maggie" sort="Larche, Maggie" uniqKey="Larche M" first="Maggie" last="Larché">Maggie Larché</name><affiliation wicri:level="4"><nlm:affiliation>Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Faculty of Health Sciences, McMaster University, Hamilton, ON</wicri:regionArea><orgName type="university">Université McMaster</orgName><placeName><settlement type="city">Hamilton (Ontario)</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Manning, Joanne" sort="Manning, Joanne" uniqKey="Manning J" first="Joanne" last="Manning">Joanne Manning</name><affiliation wicri:level="1"><nlm:affiliation>Clinical and Research Vascular Laboratories, Salford Royal NHS Foundation Trust, Salford, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Clinical and Research Vascular Laboratories, Salford Royal NHS Foundation Trust, Salford</wicri:regionArea><wicri:noRegion>Salford</wicri:noRegion></affiliation></author><author><name sortKey="Pope, Janet" sort="Pope, Janet" uniqKey="Pope J" first="Janet" last="Pope">Janet Pope</name><affiliation wicri:level="1"><nlm:affiliation>Bone & Joint Institute, University of Western Ontario, London, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Bone & Joint Institute, University of Western Ontario, London, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation></author><author><name sortKey="Spiera, Robert" sort="Spiera, Robert" uniqKey="Spiera R" first="Robert" last="Spiera">Robert Spiera</name><affiliation wicri:level="2"><nlm:affiliation>Department of Rheumatology, Hospital for Special Surgery, New York City, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Rheumatology, Hospital for Special Surgery, New York City, NY</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Steen, Virginia" sort="Steen, Virginia" uniqKey="Steen V" first="Virginia" last="Steen">Virginia Steen</name><affiliation wicri:level="2"><nlm:affiliation>Department of Medicine, Georgetown University, Washington, DC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Medicine, Georgetown University, Washington, DC</wicri:regionArea><placeName><region type="state">District de Columbia</region></placeName></affiliation></author><author><name sortKey="Sutton, Evelyn" sort="Sutton, Evelyn" uniqKey="Sutton E" first="Evelyn" last="Sutton">Evelyn Sutton</name><affiliation><nlm:affiliation>Division of Rheumatology, Dalhousie University, Halifax, NS.</nlm:affiliation><wicri:noCountry code="subField">NS</wicri:noCountry></affiliation></author><author><name sortKey="Thorne, Carter" sort="Thorne, Carter" uniqKey="Thorne C" first="Carter" last="Thorne">Carter Thorne</name><affiliation><nlm:affiliation>Southlake Regional Health Centre, Newmarket, ON.</nlm:affiliation><wicri:noCountry code="subField">ON</wicri:noCountry></affiliation></author><author><name sortKey="Wilcox, Pearce" sort="Wilcox, Pearce" uniqKey="Wilcox P" first="Pearce" last="Wilcox">Pearce Wilcox</name><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, University of British Columbia, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, University of British Columbia, Vancouver, BC</wicri:regionArea><orgName type="university">Université de la Colombie-Britannique</orgName><placeName><settlement type="city">Vancouver</settlement><region type="state">Colombie-Britannique </region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Département de médecine, Université Laval, Québec, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Département de médecine, Université Laval, Québec, QC</wicri:regionArea><orgName type="university">Université Laval</orgName><placeName><settlement type="city">Québec (ville)</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><affiliation wicri:level="4"><nlm:affiliation>Department of Psychiatry, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Psychiatry, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC</wicri:regionArea><wicri:noRegion>QC</wicri:noRegion></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, McGill University, Montreal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montréal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Educational and Counselling Psychology, McGill University, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Educational and Counselling Psychology, McGill University, Montréal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>Department of Psychology, McGill University, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Psychology, McGill University, Montréal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>School of Nursing, McGill University, Montréal, QC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>School of Nursing, McGill University, Montréal, QC</wicri:regionArea><orgName type="university">Université McGill</orgName><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Mayes, Maureen D" sort="Mayes, Maureen D" uniqKey="Mayes M" first="Maureen D" last="Mayes">Maureen D. Mayes</name><affiliation wicri:level="2"><nlm:affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX</wicri:regionArea><placeName><region type="state">Texas</region></placeName></affiliation></author></analytic><series><title level="j">Rheumatology (Oxford, England)</title><idno type="eISSN">1462-0332</idno><imprint><date when="2018" type="published">2018</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Canada (epidemiology)</term><term>Databases, Factual (MeSH)</term><term>Europe (epidemiology)</term><term>Female (MeSH)</term><term>Follow-Up Studies (MeSH)</term><term>Humans (MeSH)</term><term>Male (MeSH)</term><term>Middle Aged (MeSH)</term><term>Patient Reported Outcome Measures (MeSH)</term><term>Patient Satisfaction (MeSH)</term><term>Patient-Centered Care (MeSH)</term><term>Prevalence (MeSH)</term><term>Retrospective Studies (MeSH)</term><term>Scleroderma, Systemic (diagnosis)</term><term>Scleroderma, Systemic (epidemiology)</term><term>Scleroderma, Systemic (therapy)</term><term>Severity of Illness Index (MeSH)</term><term>Surveys and Questionnaires (MeSH)</term><term>United States (epidemiology)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adulte d'âge moyen (MeSH)</term><term>Bases de données factuelles (MeSH)</term><term>Canada (épidémiologie)</term><term>Enquêtes et questionnaires (MeSH)</term><term>Europe (épidémiologie)</term><term>Femelle (MeSH)</term><term>Humains (MeSH)</term><term>Indice de gravité de la maladie (MeSH)</term><term>Mesures des résultats rapportés par les patients (MeSH)</term><term>Mâle (MeSH)</term><term>Prévalence (MeSH)</term><term>Satisfaction des patients (MeSH)</term><term>Sclérodermie systémique (diagnostic)</term><term>Sclérodermie systémique (thérapie)</term><term>Sclérodermie systémique (épidémiologie)</term><term>Soins centrés sur le patient (MeSH)</term><term>États-Unis (épidémiologie)</term><term>Études de suivi (MeSH)</term><term>Études rétrospectives (MeSH)</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Scleroderma, Systemic</term></keywords><keywords scheme="MESH" qualifier="diagnostic" xml:lang="fr"><term>Sclérodermie systémique</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Canada</term><term>Europe</term><term>Scleroderma, Systemic</term><term>United States</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Scleroderma, Systemic</term></keywords><keywords scheme="MESH" qualifier="thérapie" xml:lang="fr"><term>Sclérodermie systémique</term></keywords><keywords scheme="MESH" qualifier="épidémiologie" xml:lang="fr"><term>Canada</term><term>Europe</term><term>Sclérodermie systémique</term><term>États-Unis</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Databases, Factual</term><term>Female</term><term>Follow-Up Studies</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Patient Reported Outcome Measures</term><term>Patient Satisfaction</term><term>Patient-Centered Care</term><term>Prevalence</term><term>Retrospective Studies</term><term>Severity of Illness Index</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adulte d'âge moyen</term><term>Bases de données factuelles</term><term>Enquêtes et questionnaires</term><term>Femelle</term><term>Humains</term><term>Indice de gravité de la maladie</term><term>Mesures des résultats rapportés par les patients</term><term>Mâle</term><term>Prévalence</term><term>Satisfaction des patients</term><term>Soins centrés sur le patient</term><term>Études de suivi</term><term>Études rétrospectives</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>Objectives</b></p><p>The Scleroderma Patient-centered Intervention Network (SPIN) Cohort is a web-based cohort designed to collect patient-reported outcomes at regular intervals as a framework for conducting trials of psychosocial, educational, self-management and rehabilitation interventions for patients with SSc. The aim of this study was to present baseline demographic, medical and patient-reported outcome data of the SPIN Cohort and to compare it with other large SSc cohorts.</p></div><div type="abstract" xml:lang="en"><p><b>Methods</b></p><p>Descriptive statistics were used to summarize SPIN Cohort characteristics; these were compared with published data of the European Scleroderma Trials and Research (EUSTAR) and Canadian Scleroderma Research Group (CSRG) cohorts.</p></div><div type="abstract" xml:lang="en"><p><b>Results</b></p><p>Demographic, organ involvement and antibody profile data for SPIN (N = 1125) were generally comparable with that of the EUSTAR (N = 7319) and CSRG (N = 1390) cohorts. There was a high proportion of women and White patients in all cohorts, though relative proportions differed. Scl70 antibody frequency was highest in EUSTAR, somewhat lower in SPIN, and lowest in CSRG, consistent with the higher proportion of interstitial lung disease among dcSSc patients in SPIN compared with in CSRG (48.5 vs 40.3%). RNA polymerase III antibody frequency was highest in SPIN and remarkably lower in EUSTAR (21.1 vs 2.4%), in line with the higher prevalence of SSc renal crisis (4.5 vs 2.1%) in SPIN.</p></div><div type="abstract" xml:lang="en"><p><b>Conclusion</b></p><p>Although there are some differences, the SPIN Cohort is broadly comparable with other large prevalent SSc cohorts, increasing confidence that insights gained from the SPIN Cohort should be generalizable, although it should be noted that all three cohorts include primarily White participants.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">29868924</PMID><DateCompleted><Year>2018</Year><Month>08</Month><Day>31</Day></DateCompleted><DateRevised><Year>2018</Year><Month>08</Month><Day>31</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1462-0332</ISSN><JournalIssue CitedMedium="Internet"><Volume>57</Volume><Issue>9</Issue><PubDate><Year>2018</Year><Month>09</Month><Day>01</Day></PubDate></JournalIssue><Title>Rheumatology (Oxford, England)</Title><ISOAbbreviation>Rheumatology (Oxford)</ISOAbbreviation></Journal><ArticleTitle>The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts.</ArticleTitle><Pagination><MedlinePgn>1623-1631</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1093/rheumatology/key139</ELocationID><Abstract><AbstractText Label="Objectives">The Scleroderma Patient-centered Intervention Network (SPIN) Cohort is a web-based cohort designed to collect patient-reported outcomes at regular intervals as a framework for conducting trials of psychosocial, educational, self-management and rehabilitation interventions for patients with SSc. The aim of this study was to present baseline demographic, medical and patient-reported outcome data of the SPIN Cohort and to compare it with other large SSc cohorts.</AbstractText><AbstractText Label="Methods">Descriptive statistics were used to summarize SPIN Cohort characteristics; these were compared with published data of the European Scleroderma Trials and Research (EUSTAR) and Canadian Scleroderma Research Group (CSRG) cohorts.</AbstractText><AbstractText Label="Results">Demographic, organ involvement and antibody profile data for SPIN (N = 1125) were generally comparable with that of the EUSTAR (N = 7319) and CSRG (N = 1390) cohorts. There was a high proportion of women and White patients in all cohorts, though relative proportions differed. Scl70 antibody frequency was highest in EUSTAR, somewhat lower in SPIN, and lowest in CSRG, consistent with the higher proportion of interstitial lung disease among dcSSc patients in SPIN compared with in CSRG (48.5 vs 40.3%). RNA polymerase III antibody frequency was highest in SPIN and remarkably lower in EUSTAR (21.1 vs 2.4%), in line with the higher prevalence of SSc renal crisis (4.5 vs 2.1%) in SPIN.</AbstractText><AbstractText Label="Conclusion">Although there are some differences, the SPIN Cohort is broadly comparable with other large prevalent SSc cohorts, increasing confidence that insights gained from the SPIN Cohort should be generalizable, although it should be noted that all three cohorts include primarily White participants.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Dougherty</LastName><ForeName>Dane H</ForeName><Initials>DH</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kwakkenbos</LastName><ForeName>Linda</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Department of Psychiatry, McGill University, Montreal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Behavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen, the Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Carrier</LastName><ForeName>Marie-Eve</ForeName><Initials>ME</Initials><AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Salazar</LastName><ForeName>Gloria</ForeName><Initials>G</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Assassi</LastName><ForeName>Shervin</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Baron</LastName><ForeName>Murray</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bartlett</LastName><ForeName>Susan J</ForeName><Initials>SJ</Initials><AffiliationInfo><Affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>McGill University Health Center, Montréal, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Furst</LastName><ForeName>Daniel E</ForeName><Initials>DE</Initials><AffiliationInfo><Affiliation>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Medicine, University of Washington, Seattle, WA, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Medicine, University of Florence, Florence, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gottesman</LastName><ForeName>Karen</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Scleroderma Foundation, Danvers, MA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>van den Hoogen</LastName><ForeName>Frank</ForeName><Initials>F</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Radboud University Medical Center, Nijmegen, The Netherlands.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Rheumatology, Sint Maartenskliniek, Nijmegen, The Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Malcarne</LastName><ForeName>Vanessa L</ForeName><Initials>VL</Initials><AffiliationInfo><Affiliation>Department of Psychology, San Diego State University, San Diego, CA, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, CA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mouthon</LastName><ForeName>Luc</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris, France.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes Rares, vascularites nécrosantes et sclérodermie systémique, Hôpital Cochin, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Nielson</LastName><ForeName>Warren R</ForeName><Initials>WR</Initials><AffiliationInfo><Affiliation>Beryl & Richard Ivey Rheumatology Day Programs, St Joseph's Health Care, London, ON, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Lawson Health Research Institute, London, ON, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Poiraudeau</LastName><ForeName>Serge</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris, France.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Service de Médecine Physique et Réadaptation, Hôpital Cochin, France.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>IFR Handicap INSERM, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Sauvé</LastName><ForeName>Maureen</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Scleroderma Society of Ontario, Hamilton.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Scleroderma Society of Canada, Ottawa, ON, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Boire</LastName><ForeName>Gilles</ForeName><Initials>G</Initials><AffiliationInfo><Affiliation>Département de médecine, Sherbrooke University, Sherbrooke, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bruns</LastName><ForeName>Alessandra</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Département de médecine, Sherbrooke University, Sherbrooke, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Chung</LastName><ForeName>Lorinda</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Medicine - Med/Immunology & Rheumatology, Stanford University, Stanford, CA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Denton</LastName><ForeName>Christopher</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Royal Free London Hospital, London, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Dunne</LastName><ForeName>James V</ForeName><Initials>JV</Initials><AffiliationInfo><Affiliation>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medicine, University of British Columbia, Vancouver, BC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Fortin</LastName><ForeName>Paul</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Département de médecine, Université Laval, Québec, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Frech</LastName><ForeName>Tracy</ForeName><Initials>T</Initials><AffiliationInfo><Affiliation>Internal Medicine, University of Utah, Salt Lake City, UT, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gill</LastName><ForeName>Anna</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gordon</LastName><ForeName>Jessica</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Hospital for Special Surgery, New York City, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Herrick</LastName><ForeName>Ariane L</ForeName><Initials>AL</Initials><AffiliationInfo><Affiliation>Division of Musculoskeletal & Dermatological Sciences, University of Manchester, Salford Royal NHS Foundation Trust, Manchester, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hinchcliff</LastName><ForeName>Monique</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hudson</LastName><ForeName>Marie</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Center for Clinical Epidemiology and Community Studies, Jewish General Hospital, Montréal, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Johnson</LastName><ForeName>Sindhu R</ForeName><Initials>SR</Initials><AffiliationInfo><Affiliation>Toronto Scleroderma Program, Mount Sinai Hospital, Toronto Western Hospital, University of Toronto, Toronto, ON, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>University of Toronto, Toronto, ON, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Jones</LastName><ForeName>Niall</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Division of Rheumatology, University of Alberta, Edmonton, AB, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kafaja</LastName><ForeName>Suzanne</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Larché</LastName><ForeName>Maggie</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Manning</LastName><ForeName>Joanne</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Clinical and Research Vascular Laboratories, Salford Royal NHS Foundation Trust, Salford, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Pope</LastName><ForeName>Janet</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Bone & Joint Institute, University of Western Ontario, London, ON, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Spiera</LastName><ForeName>Robert</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Hospital for Special Surgery, New York City, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Steen</LastName><ForeName>Virginia</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Department of Medicine, Georgetown University, Washington, DC, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Sutton</LastName><ForeName>Evelyn</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Division of Rheumatology, Dalhousie University, Halifax, NS.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Thorne</LastName><ForeName>Carter</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Southlake Regional Health Centre, Newmarket, ON.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Wilcox</LastName><ForeName>Pearce</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Department of Medicine, University of British Columbia, Vancouver, BC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Département de médecine, Université Laval, Québec, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Thombs</LastName><ForeName>Brett D</ForeName><Initials>BD</Initials><AffiliationInfo><Affiliation>Department of Psychiatry, McGill University, Montreal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medicine, McGill University, Montreal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montréal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Educational and Counselling Psychology, McGill University, Montréal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Psychology, McGill University, Montréal, QC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>School of Nursing, McGill University, Montréal, QC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mayes</LastName><ForeName>Maureen D</ForeName><Initials>MD</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><CollectiveName>SPIN Investigators</CollectiveName></Author></AuthorList><Language>eng</Language><GrantList CompleteYN="Y"><Grant><GrantID>119192</GrantID><Agency>CIHR</Agency><Country>Canada</Country></Grant><Grant><GrantID>148504</GrantID><Agency>CIHR</Agency><Country>Canada</Country></Grant><Grant><GrantID>149073</GrantID><Agency>CIHR</Agency><Country>Canada</Country></Grant></GrantList><PublicationTypeList><PublicationType UI="D016430">Clinical Trial</PublicationType><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D016448">Multicenter Study</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Rheumatology (Oxford)</MedlineTA><NlmUniqueID>100883501</NlmUniqueID><ISSNLinking>1462-0324</ISSNLinking></MedlineJournalInfo><CitationSubset>AIM</CitationSubset><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D002170" MajorTopicYN="N">Canada</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D016208" MajorTopicYN="N">Databases, Factual</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005060" MajorTopicYN="N">Europe</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005500" MajorTopicYN="N">Follow-Up Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000071066" MajorTopicYN="Y">Patient Reported Outcome Measures</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D017060" MajorTopicYN="Y">Patient Satisfaction</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D018802" MajorTopicYN="Y">Patient-Centered Care</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D015995" MajorTopicYN="N">Prevalence</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012189" MajorTopicYN="N">Retrospective Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012595" MajorTopicYN="N">Scleroderma, Systemic</DescriptorName><QualifierName UI="Q000175" MajorTopicYN="N">diagnosis</QualifierName><QualifierName UI="Q000453" MajorTopicYN="Y">epidemiology</QualifierName><QualifierName UI="Q000628" MajorTopicYN="N">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D012720" MajorTopicYN="N">Severity of Illness Index</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D014481" MajorTopicYN="N">United States</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName></MeshHeading></MeshHeadingList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2017</Year><Month>07</Month><Day>07</Day></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2018</Year><Month>6</Month><Day>6</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2018</Year><Month>9</Month><Day>1</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2018</Year><Month>6</Month><Day>6</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">29868924</ArticleId><ArticleId IdType="pii">5032364</ArticleId><ArticleId IdType="doi">10.1093/rheumatology/key139</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Canada</li><li>France</li><li>Italie</li><li>Pays-Bas</li><li>Royaume-Uni</li><li>États-Unis</li></country><region><li>Angleterre</li><li>Californie</li><li>Colombie-Britannique </li><li>District de Columbia</li><li>Grand Londres</li><li>Grand Manchester</li><li>Gueldre</li><li>Illinois</li><li>Maryland</li><li>Massachusetts</li><li>Ontario</li><li>Québec</li><li>Texas</li><li>Utah</li><li>Washington (État)</li><li>État de New York</li><li>Île-de-France</li></region><settlement><li>Hamilton (Ontario)</li><li>Londres</li><li>Manchester</li><li>Montréal</li><li>Nimègue</li><li>Paris</li><li>Québec (ville)</li><li>Seattle</li><li>Stanford (Californie)</li><li>Toronto</li><li>Vancouver</li></settlement><orgName><li>Université Laval</li><li>Université McGill</li><li>Université McMaster</li><li>Université Paris-Descartes</li><li>Université Stanford</li><li>Université de Manchester</li><li>Université de Toronto</li><li>Université de Washington</li><li>Université de la Colombie-Britannique</li></orgName></list><tree><noCountry><name sortKey="Sutton, Evelyn" sort="Sutton, Evelyn" uniqKey="Sutton E" first="Evelyn" last="Sutton">Evelyn Sutton</name><name sortKey="Thorne, Carter" sort="Thorne, Carter" uniqKey="Thorne C" first="Carter" last="Thorne">Carter Thorne</name></noCountry><country name="États-Unis"><region name="Texas"><name sortKey="Dougherty, Dane H" sort="Dougherty, Dane H" uniqKey="Dougherty D" first="Dane H" last="Dougherty">Dane H. Dougherty</name></region><name sortKey="Assassi, Shervin" sort="Assassi, Shervin" uniqKey="Assassi S" first="Shervin" last="Assassi">Shervin Assassi</name><name sortKey="Bartlett, Susan J" sort="Bartlett, Susan J" uniqKey="Bartlett S" first="Susan J" last="Bartlett">Susan J. Bartlett</name><name sortKey="Chung, Lorinda" sort="Chung, Lorinda" uniqKey="Chung L" first="Lorinda" last="Chung">Lorinda Chung</name><name sortKey="Frech, Tracy" sort="Frech, Tracy" uniqKey="Frech T" first="Tracy" last="Frech">Tracy Frech</name><name sortKey="Furst, Daniel E" sort="Furst, Daniel E" uniqKey="Furst D" first="Daniel E" last="Furst">Daniel E. Furst</name><name sortKey="Furst, Daniel E" sort="Furst, Daniel E" uniqKey="Furst D" first="Daniel E" last="Furst">Daniel E. Furst</name><name sortKey="Gordon, Jessica" sort="Gordon, Jessica" uniqKey="Gordon J" first="Jessica" last="Gordon">Jessica Gordon</name><name sortKey="Gottesman, Karen" sort="Gottesman, Karen" uniqKey="Gottesman K" first="Karen" last="Gottesman">Karen Gottesman</name><name sortKey="Hinchcliff, Monique" sort="Hinchcliff, Monique" uniqKey="Hinchcliff M" first="Monique" last="Hinchcliff">Monique Hinchcliff</name><name sortKey="Kafaja, Suzanne" sort="Kafaja, Suzanne" uniqKey="Kafaja S" first="Suzanne" last="Kafaja">Suzanne Kafaja</name><name sortKey="Malcarne, Vanessa L" sort="Malcarne, Vanessa L" uniqKey="Malcarne V" first="Vanessa L" last="Malcarne">Vanessa L. Malcarne</name><name sortKey="Malcarne, Vanessa L" sort="Malcarne, Vanessa L" uniqKey="Malcarne V" first="Vanessa L" last="Malcarne">Vanessa L. Malcarne</name><name sortKey="Mayes, Maureen D" sort="Mayes, Maureen D" uniqKey="Mayes M" first="Maureen D" last="Mayes">Maureen D. 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Dunne</name><name sortKey="Fortin, Paul" sort="Fortin, Paul" uniqKey="Fortin P" first="Paul" last="Fortin">Paul Fortin</name><name sortKey="Gill, Anna" sort="Gill, Anna" uniqKey="Gill A" first="Anna" last="Gill">Anna Gill</name><name sortKey="Hudson, Marie" sort="Hudson, Marie" uniqKey="Hudson M" first="Marie" last="Hudson">Marie Hudson</name><name sortKey="Hudson, Marie" sort="Hudson, Marie" uniqKey="Hudson M" first="Marie" last="Hudson">Marie Hudson</name><name sortKey="Johnson, Sindhu R" sort="Johnson, Sindhu R" uniqKey="Johnson S" first="Sindhu R" last="Johnson">Sindhu R. Johnson</name><name sortKey="Johnson, Sindhu R" sort="Johnson, Sindhu R" uniqKey="Johnson S" first="Sindhu R" last="Johnson">Sindhu R. Johnson</name><name sortKey="Jones, Niall" sort="Jones, Niall" uniqKey="Jones N" first="Niall" last="Jones">Niall Jones</name><name sortKey="Kwakkenbos, Linda" sort="Kwakkenbos, Linda" uniqKey="Kwakkenbos L" first="Linda" last="Kwakkenbos">Linda Kwakkenbos</name><name sortKey="Larche, Maggie" sort="Larche, Maggie" uniqKey="Larche M" first="Maggie" last="Larché">Maggie Larché</name><name sortKey="Nielson, Warren R" sort="Nielson, Warren R" uniqKey="Nielson W" first="Warren R" last="Nielson">Warren R. Nielson</name><name sortKey="Nielson, Warren R" sort="Nielson, Warren R" uniqKey="Nielson W" first="Warren R" last="Nielson">Warren R. Nielson</name><name sortKey="Pope, Janet" sort="Pope, Janet" uniqKey="Pope J" first="Janet" last="Pope">Janet Pope</name><name sortKey="Sauve, Maureen" sort="Sauve, Maureen" uniqKey="Sauve M" first="Maureen" last="Sauvé">Maureen Sauvé</name><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name><name sortKey="Wilcox, Pearce" sort="Wilcox, Pearce" uniqKey="Wilcox P" first="Pearce" last="Wilcox">Pearce Wilcox</name><name sortKey="Wilcox, Pearce" sort="Wilcox, Pearce" uniqKey="Wilcox P" first="Pearce" last="Wilcox">Pearce Wilcox</name></country><country name="Pays-Bas"><region name="Gueldre"><name sortKey="Kwakkenbos, Linda" sort="Kwakkenbos, Linda" uniqKey="Kwakkenbos L" first="Linda" last="Kwakkenbos">Linda Kwakkenbos</name></region><name sortKey="Van Den Hoogen, Frank" sort="Van Den Hoogen, Frank" uniqKey="Van Den Hoogen F" first="Frank" last="Van Den Hoogen">Frank Van Den Hoogen</name><name sortKey="Van Den Hoogen, Frank" sort="Van Den Hoogen, Frank" uniqKey="Van Den Hoogen F" first="Frank" last="Van Den Hoogen">Frank Van Den Hoogen</name></country><country name="Italie"><noRegion><name sortKey="Furst, Daniel E" sort="Furst, Daniel E" uniqKey="Furst D" first="Daniel E" last="Furst">Daniel E. Furst</name></noRegion></country><country name="France"><region name="Île-de-France"><name sortKey="Mouthon, Luc" sort="Mouthon, Luc" uniqKey="Mouthon L" first="Luc" last="Mouthon">Luc Mouthon</name></region><name sortKey="Mouthon, Luc" sort="Mouthon, Luc" uniqKey="Mouthon L" first="Luc" last="Mouthon">Luc Mouthon</name><name sortKey="Poiraudeau, Serge" sort="Poiraudeau, Serge" uniqKey="Poiraudeau S" first="Serge" last="Poiraudeau">Serge Poiraudeau</name><name sortKey="Poiraudeau, Serge" sort="Poiraudeau, Serge" uniqKey="Poiraudeau S" first="Serge" last="Poiraudeau">Serge Poiraudeau</name><name sortKey="Poiraudeau, Serge" sort="Poiraudeau, Serge" uniqKey="Poiraudeau S" first="Serge" last="Poiraudeau">Serge Poiraudeau</name></country><country name="Royaume-Uni"><region name="Angleterre"><name sortKey="Denton, Christopher" sort="Denton, Christopher" uniqKey="Denton C" first="Christopher" last="Denton">Christopher Denton</name></region><name sortKey="Herrick, Ariane L" sort="Herrick, Ariane L" uniqKey="Herrick A" first="Ariane L" last="Herrick">Ariane L. Herrick</name><name sortKey="Manning, Joanne" sort="Manning, Joanne" uniqKey="Manning J" first="Joanne" last="Manning">Joanne Manning</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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